Faces of the Foundation Photo

Welcome to the Faces of the Foundation. Each month we will introduce you to people from around the world that are considered different. You will learn about why they are perceived as being different whether it is from being born with a genetic disorder, a disorder that developed after birth, or an accident which caused a physical injury or affected them intellectually. Some of our champions will have a blog so you can stay updated and connected to them.

 

2017

Maddie

Maddie

Condition:
Caudal Regression Syndrome/Sacral Agenesis (SA/CRS)
Meet Maddie

Mark

Mark

Condition:
Lamellar Ichthyosis
Meet Mark

Sammi

Sammi

Condition:
Choroid Plexus Papilloma
Meet Sammi

Sophie

Sophie

Condition:
Charcot Marie Tooth Disease
Meet Sophie

2016

Aidan

Aidan

Condition:
DUPq15 Syndrome
Meet Aidan

Billy

Billy

Condition:
Visually Impaired
Meet Billy

Brandon

Brandon

Condition:
Dwarfism
Meet Brandon

Glory

Glory

Condition:
Dwarfism
Meet Glory

Hannah

Hannah

Condition:
TENS
Meet Hannah

KJ

KJ

Condition:
Stevens-Johnson Syndrome
Meet KJ

Maria

Maria

Condition:
Ichthyosis
Meet Maria

2015

Alison M.

Alison M.

Condition:
Treacher Collins Syndrome
Meet Alison

Cassidy K.

Cassidy K.

Condition:
Dwarfism
Meet Cassidy

Dominic J.

Dominic J.

Condition:
Pfeiffer Syndrome
Meet Dominic

Jen B.

Jeb B.

Condition:
Multiple Sclerosis
Meet Jen

John Q.

John Q.

Condition:
Burns
Meet John

Juss

Juss

Condition:
Albinism
Meet Juss

Reggie B.

Reggie B

Condition:
NeuroFibromatosis
Meet Reggie

Zahra I.

Zahra I.

Condition:
Freedman Sheldon Syndrome
Meet Zahra