Meet our Courageous Faces, our “Champions” as we call them.  You too, will become inspired by their courage as each shares their journey.  Join us in celebration of these amazing people as we continue to enhance the quality of their lives.

Maddie

Maddie

Condition: Caudal Regression Syndrome/Sacral Agenesis (SA/CRS)
Meet Maddie

Mark

Mark

Condition: Lamellar Ichthyosis
Meet Mark

Sammi

Sammi

Condition: Choroid Plexus Papilloma
Meet Sammi

Sophie

Sophie

Condition: Charcot Marie Tooth Disease
Meet Sophie

Aidan

Aidan

Condition: DUPq15 Syndrome
Meet Aidan

Billy

Billy

Condition: Visually Impaired
Meet Billy

Brandon

Brandon

Condition: Dwarfism
Meet Brandon

Glory

Glory

Condition: Dwarfism
Meet Glory

Hannah

Hannah

Condition: TENS
Meet Hannah

Maria

Maria

Condition: Ichthyosis
Meet Maria

Cassidy K.

Cassidy K.

Condition: Dwarfism
Meet Cassidy

Dominic J.

Dominic J.

Condition: Pfeiffer Syndrome
Meet Dominic

John Q.

John Q.

Condition: Burns
Meet John

Juss

Juss

Condition: Albinism
Meet Juss

Reggie B.

Reggie B

Condition: NeuroFibromatosis
Meet Reggie

Zahra I.

Zahra I.

Condition: Freedman Sheldon Syndrome
Meet Zahra

In Loving Memory of:

KJ

KJ

Condition: Stevens-Johnson Syndrome
Meet KJ

Jen B.

Jen B.

Condition: Multiple Sclerosis
Meet Jen