Faces of the Foundation
Meet our Courageous Faces, our “Champions” as we call them. You too, will become inspired by their courage as each shares their journey. Join us in celebration of these amazing people as we continue to enhance the quality of their lives.
Caudal Regression Syndrome/Sacral Agenesis (SA/CRS)
Charcot Marie Tooth Disease
Freedman Sheldon Syndrome
In Loving Memory of: