President’s Blog

Back in December 2014, Cathy (Cassidy’s mom) and I were introduced by some common friends. I learned Cathy is a single mom, raising her beautiful daughter, Cassidy in Florida. In February 2015, Cathy posted a message that was heartbreaking! She said that Cassidy had not had a playdate since October 2014. She went on to say that Cassidy asks all her friends to do things, but they either say no or if they say yes, they don’t show up or call to cancel. Cassidy told her mom that she doesn’t even want to wake in the morning because she is so lonely.

After reading Cathy’s post, I called her mom. She said that Cassidy has many health challenges since birth, has very low self-conscience and struggles with feeling different (you can read about Cassidy on her mom’s blog below).

I shared that the foundation was going to feature a monthly “Face of the Foundation” and we wanted Cassidy to be our “first Face”. Her mom was excited and at the March 7, 2015 event in Denver, “An Evening to Remember” I told the audience Cassidy’s story asking them to support Cassidy and let her know that she has many friends in Colorado. The audience responded with a resounding yes!

The parents of our World Ambassador Samantha Stevens, Brian & Kathy Stevens then offered to take Cassidy & her mom to Disney World with their family later this summer. We will be starting a blog for Cassidy in July so that she can share with all of her new friends and supporters what she has been doing.

Cassidy’s Story

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  • Happy, Loving, Kind & Accepting
  • Aspires to design clothing for people of all shapes & sizes
  • A true girly girl who likes sparkle & glitz
  • Condition: Conradi Hunermann Syndrome

Cassidy wants people to know her as someone who looks on the bright side and stays positive. That’s a radically different description of how anyone would characterize her earlier life.

The specifics are almost too many and too graphic to list. Born prematurely, Cassidy began her fragile, tentative life with multiple, complicated surgeries resulting from Conradi Hunermann Syndrome, a form of dwarfism which only affects one side of the body.

Specialists had to make several dozen surgical repairs affecting her eyes, legs, and her tiny spine, including body casts and traction all before she was even six-years old. The details are enough to make anyone shudder.

Now as a teenager, Cassidy is living in Arizona with her mom. She likes fashion and glitz, looking pretty, and taking selfies, as do most teens. She has said she might want to study medicine, but also loves the fashion world and leans in that direction as well.

Fun things to know about Cassidy:

  • Through it all Cassidy continues to be positive, engaging, and upbeat.
  • If you ask her what she wants to be when she grows up, some days she says she wants to be a pediatrician, but most days she wants to design fashionable clothing for little people of all shapes and sizes
  • She enjoys looking her best while singing.

Why I am thankful for the Courageous Faces Foundation:

I am now part of a whole new “Foundation Family” plus I’ve gotten to meet a lot of new friends at our Galas and Foundation events.

I feel more people care for me. They’ve helped make my life more fun and given me trips to look forward too, including my first LPA Convention.

Courageous Faces makes me realize I’ll never face new challenges alone. I’ve also been able to do things I wouldn’t have otherwise experienced.

It’s a foundation that has helped me see I’m not alone when I’m facing challenges related to my conditions, or as we call it, different ability.

Cassidy’s Photos

Cassidy’s Blog

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