We dramatically improve the lives of those living with rare and severe medical conditions so they can live their best life possible.
Our vision is to help them thrive, not just survive. Our support is ongoing, direct, and personalized for each of our “Inspirational Faces,” or Champions of the Foundation, as we call them, and their families. We work comprehensively with everyone involved to achieve the greatest benefit in the shortest time. The conditions our Champions live with can result from genetics, injuries, illnesses, or traumatic events. Geographically, they’re spread out over eleven different states.